Jeff's wandering around, packing stuff, getting ready to (hopefully) go home to Bloomington tomorrow. There are so many reminders everywhere. We went to Kangaroo Kids, a used clothing store/maternity support store that we frequented when we lived here post-transplant. Jasmine, ever the natural bargain hunter, loved the store. The owner recognized us, and, in her … Continue reading Things I Know
Author: thefirespiral
Jasmine’s Memorial Service
Jasmine's memorial service will be on Saturday, February 21 at 2:00 PM. We will be holding it at the Unitarian Universalist Church of Bloomington/Normal -- the address follows: 1613 E. Emerson Bloomington, IL We ask that in lieu of flowers, donations be made to or time volunteered with one of the following organizations: CF Foundation … Continue reading Jasmine’s Memorial Service
We love you, Jasmine.
Jasmine passed away Saturday, February 14 at about 7:00 PM CST. She fought hard, but her body was just too tired and it was time to let her get her wings. She had been on the ventilator since Tuesday and the doctors tried several different treatments trying to save her. In the end, her lungs … Continue reading We love you, Jasmine.
Burning Bright
I didn't realize until this evening that it was Friday the 13th, which should be a sign of just how out of it I really am. Today I discussed arrangements for Jasmine's body when she dies. I talked about how I wanted her to die and whether or not I wanted them to wake her … Continue reading Burning Bright
Dark
The ventilator is pretty much maxed. It can't do any more to help her breathe. If she gets any worse, we will have to let her go. She had a fever today and started some new rejection meds that could also help some of the lung damage. Dr. Sweet was very somber tonight. I don't … Continue reading Dark
Change, when it comes, cracks everything open
Yesterday afternoon my mom got here, thank the gods. We had a conference with the doctors about Jasmine's biopsy results. It's not good. The best case scenario is that she has an extremely slow recovery -- at least another month on the ventilator -- and changes some meds and when everything is said and done, … Continue reading Change, when it comes, cracks everything open
Not Good
Today, the dreaded phone call. I keep spontaneously bursting into tears and I can hardly type, so please forgive any typos. My fingers aren't working. I guess since I'm sitting it's the equivalent of my legs falling out from underneath me. Jeff called me this morning and said they had to put Jasmine on the … Continue reading Not Good
Stormy Weather
Holy cow! I had no idea so many of you would actually come check this out! Several people have written me in emails and asked for mailing info for Jasmine. The best bet would probably be to send cards and letters to Jeff at Ronald McDonald House, and he can take them in to her. … Continue reading Stormy Weather
Blindfolded
I'm going to St. Louis on Wednesday night... I'm so glad to be going. Jasmine is doing a little better, Jeff says, but it doesn't sound better enough to put my mind at rest. I can't help but feeling like I'm going through the stages of dying with her, except that I'm not with her. … Continue reading Blindfolded
Sad
A whirlwind came with the snow last night -- it was Jeff and a ritual. He showed up at about 7:15 with dinner from China Star. We sat and I ate my honey sesame chicken while he ate garlic chicken -- I had to have at least a bite of the broccoli so that later, … Continue reading Sad
by the sea, by the sea, by the beautiful sea 