Today is Jasmine's memorial service at the UU church. I know it will be beautiful. I am so touched by how many people have come to be here from all corners of the United States. A friend of mine wrote a song for her that is so amazing -- it captures her perfectly. I don't … Continue reading Jasmine’s Memory
Memoir
Embrace the Change
We came home yesterday after receiving Jasmine from the funeral home. Jeff had made a seat for her in the front seat of the truck, with all her stuffed animals and her quilt from the hospital. She would have been so smug about riding in the front seat. We drove home, and when we got … Continue reading Embrace the Change
Jasmine’s Memorial Service
Jasmine's memorial service will be on Saturday, February 21 at 2:00 PM. We will be holding it at the Unitarian Universalist Church of Bloomington/Normal -- the address follows: 1613 E. Emerson Bloomington, IL We ask that in lieu of flowers, donations be made to or time volunteered with one of the following organizations: CF Foundation … Continue reading Jasmine’s Memorial Service
Burning Bright
I didn't realize until this evening that it was Friday the 13th, which should be a sign of just how out of it I really am. Today I discussed arrangements for Jasmine's body when she dies. I talked about how I wanted her to die and whether or not I wanted them to wake her … Continue reading Burning Bright
Change, when it comes, cracks everything open
Yesterday afternoon my mom got here, thank the gods. We had a conference with the doctors about Jasmine's biopsy results. It's not good. The best case scenario is that she has an extremely slow recovery -- at least another month on the ventilator -- and changes some meds and when everything is said and done, … Continue reading Change, when it comes, cracks everything open
Not Good
Today, the dreaded phone call. I keep spontaneously bursting into tears and I can hardly type, so please forgive any typos. My fingers aren't working. I guess since I'm sitting it's the equivalent of my legs falling out from underneath me. Jeff called me this morning and said they had to put Jasmine on the … Continue reading Not Good
Stormy Weather
Holy cow! I had no idea so many of you would actually come check this out! Several people have written me in emails and asked for mailing info for Jasmine. The best bet would probably be to send cards and letters to Jeff at Ronald McDonald House, and he can take them in to her. … Continue reading Stormy Weather
Blindfolded
I'm going to St. Louis on Wednesday night... I'm so glad to be going. Jasmine is doing a little better, Jeff says, but it doesn't sound better enough to put my mind at rest. I can't help but feeling like I'm going through the stages of dying with her, except that I'm not with her. … Continue reading Blindfolded
Sad
A whirlwind came with the snow last night -- it was Jeff and a ritual. He showed up at about 7:15 with dinner from China Star. We sat and I ate my honey sesame chicken while he ate garlic chicken -- I had to have at least a bite of the broccoli so that later, … Continue reading Sad
Revelations
Jeff spoke with the doctors yesterday and here are the latest revelations: The blood tests confirmed that Jasmine is having a form of rejection where there are antibodies in her blood that are attacking her lungs. This form of rejection is rare and the treatment of cleaning the plasma is a new one, albeit one … Continue reading Revelations
by the sea, by the sea, by the beautiful sea 